Local Heart, Global Soul

April 11, 2015

The Smoothest Of Skin, But If Only Things Would Calm Down…

Filed under: An Accidental Franken-Foot,PHOTOGRAPHY — kiwidutch @ 1:00 am
Tags: , ,
(photograph © Kiwidutch)

(photograph © Kiwidutch)

Yet another update on my foot.  Time has been slipping past but not always very well for me.

The “walking” cast was less of a walking cast and more of a standing one and it was painful right from the start.

It definitely wasn’t too tight, it was just that no matter what I did, I couldn’t manage to be comfortable with it.

One of the problems was the height of the “block”underneath, it made standing and walking hard work on my back due to my legs being such different lengths.

An email to the Plaster department got a reply suggesting that I add a shoe of similar height to my other foot to compensate, but the morphine is making me really dizzy so I decide that back pain is a better option than a tumble off high heels with the possibility of damage to my good foot.

Annoyingly I had as many problems at night as I did during the day with this cast, so started counting down the days until it’s removal almost as soon as it went on. I also ended up taking pain relief as often as I could,  so a trip back across the country to the hospital was an anticipated event. Finially  plaster cast number 12 in this foot saga is removed and I gain a walking boot. Not just any walking boot mind you, a walking boot with technology in the shape of left and right side air-bags inside of them.

The air-bags can be pumped up via a pump button on the side, and deflated by a smaller button next to it. I’m advised that between nine and twelve “pumps” on the inflate button is about right each side, but this advice is for a foot without dystrophy, and I’m already having trouble getting past three or four presses of the inflate button before the pressure gets unbearable.

Again I’m emailing the Pain department in my treating hospital, and getting advice from work doctors as well, advising extended elevation and even more pain relief.  For the moment I’m trying to wear the boot once or twice per day, for at least half an hour. It’s clear that whilst it’s intended that I wear it for three or four hours every day, and use it for support during day to day activities for the next month, that I’m not  going to manage it as planned. A good part of the problem is that the moment my foot is no longer elevated it begins to swell,  something that I was warned was to be expected, and that a time of  “calming down” would be normal.

The original idea was that I would wear the boot for a month and then progress to a rigid, stiff shoe, but time will tell if things are actually going to go to plan yet or not. One good thing to come from the plaster cast is that skin encased and not open to the usual exfoliation process that is normal for skin. As soon as the cast is off my skin starts peeling like crazy, and eventually huge lumps of hard, old skin come off both my leg and all parts of my foot. The process was quick and the “new” skin underneath is baby soft. The only pity is that my right foot still needs the attention of a pumice stone because my new found mega-smoothness is of course only on my left foot.

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

(photograph © Kiwidutch)

 

13 Comments »

  1. I am sorry the healing is taking so long. It must be extremely frustrating as well as painful…

    Comment by kiwiskan — April 11, 2015 @ 7:17 am | Reply

    • Kiwiskan,
      It’s probably just as well that we can’t see into the future… sometimes you REALLY don’t want to know…

      Comment by kiwidutch — April 11, 2015 @ 8:28 pm | Reply

      • this just seems to have gone on for far too long. Thinking of you…

        Comment by kiwiskan — April 12, 2015 @ 7:00 am | Reply

  2. It seems to be that at every ‘step’ along the way your foot just doesn’t want to do what is expected of it. It must be so frustrating for you. Baby soft skin on one leg is small compensation, but must be a lovely feeling. 🙂

    Comment by Elaine - I used to be indecisive — April 11, 2015 @ 10:46 am | Reply

    • Elaine,
      It seems like my foot is determined to do things as far as differently from a “textbook recovery” as possible. Yes, I knew that an operation would be risky, and that the dystrophy “could” get worse, but there was also hope that it could get better and of course you try to look on the bright side when weighing up your options. One thing IS for certain: I couldn’t go on with the bones out of place, and there are other more radical options, stem cell and amputation if physio and further pain treatments don’t work. I’m literally taking one day at a time, and yes “frustration” barely covers it some days. Lets just say that it’s a good thing I don;t own my own chain saw some days!

      Comment by kiwidutch — April 11, 2015 @ 8:25 pm | Reply

      • Sometimes it is good to be different, and not do things as everyone expects, but this is definitely NOT one of those situations! I will send good luck vibes and hope that tomorrow is better. Thank goodness you don’t own a chainsaw – imagine the mess. 🙂

        Comment by Elaine - I used to be indecisive — April 11, 2015 @ 10:19 pm | Reply

  3. The stitching looks like it is healing well but boy is that foot swollen compared to the other. I can only imagine how much it hurts. Actually, I’m not sure I can even imagine it. Although progress is as slow as an ice age, I hope things continue to progress in a positive direction!

    Comment by Carrie — April 12, 2015 @ 3:47 am | Reply

    • Carrie.
      I was warned that swelling was to be expected, the biggest problem is that it gets even bigger if my foot has been down for a while, and the bigger it swells the more pain I have. I’ve resorted to putting my foot on the dashboard for all car journeys, otherwise I’d be arriving at appointments in tears.

      The foot feels like it’s one big burn, the pressure from the boot and the air-bags in it is like pouring boiling water on the burn, I literally rip the boot off some days. That said I still HAVE to force myself to get used to it because otherwise I can never make the transition to any sort of shoe.

      That feeling, once I described it to the Doctors, is apparently typical of dystrophy and there is a super fine line between “working though the pain” and doing too much, and not doing more damage. I try for 30 minutes per day in the boot, sometime in one attempt, sometimes more, but yes, it’s slooooow going. Grrr.

      People around me are helping me persevere and stay positive, and I’m talking to a psychologist too, about handling constant pain.Naturally it’s easier to talk about than to do, but hey, you have to try right? 🙂

      Comment by kiwidutch — April 12, 2015 @ 11:15 am | Reply

  4. What an ordeal! Hang in there!

    Comment by zannyro — April 13, 2015 @ 1:41 am | Reply

    • Thanks Zannyro,
      Progress is VERY slow at the moment and the morphine doses have been increasing to alarming levels, so it’s not great at the moment, but each day is different, there are just as many “up” days as “down” days. I’m trying to handle them …a day at a time, … or some times a hour at a time.

      Comment by kiwidutch — May 2, 2015 @ 7:59 pm | Reply

      • 😦 😦 😦 Keep hanging in there.

        Comment by zannyro — May 2, 2015 @ 11:53 pm | Reply

        • Thanks Zannyro!
          I try but sadly if recent weeks are anything to go by, it looks like there is no smooth path for me just yet. Luckily I have friends and family who can handle the tears.

          Comment by kiwidutch — May 3, 2015 @ 10:13 pm | Reply

          • Such a tough time….my sincere wishes for some relief for you…God bless..

            Comment by zannyro — May 4, 2015 @ 12:39 am | Reply


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